Two dragons

I had a CT scan on Friday.  We had a really busy and fun weekend, during which I ran my best 5K race ever.  I’ve never run a 5K in less than 40 minutes, and my time was 38:41 with a 12:27 pace.  I know it isn’t fast, compared to most runners, but, honestly, I was thrilled.  My follow-up doc appointment was scheduled for Monday.  I didn’t have any anxiety (or scanxiety as we cancer fighters call it) all weekend, but for some reason, an hour before the visit, I started worrying and couldn’t stop.  When we got there, I noticed that they called every person back before me, even if they had arrived after.  I started pacing, near stroke-level panic, realizing they might be putting me as Dr. Mehta’s last appointment.  This could all be a total coincidence, but there was something I was sensing that turned out to not be totally unfounded.

Being a cancer patient does all of these strange things to you, and one of them is it creates this extreme, urgent desire to read people.  You read everyone from the receptionist to the lady who takes your vitals to the nurses, and most definitely the doctor.  I wonder how, when they teach about bedside manner in medical school, how they handle this.  Do they tell the prospective doctors that patients waiting to hear news will be filled to the brim with anxiety and reading every facial expression, every word, interpreting every delay, every bit of data.  She looked at me sympathetically – something is wrong!  He frowned at my results – I’m dying, like, tomorrow.  I even read the “system.”  They didn’t email my blood work – I definitely have diabetes, leukemia, high cholesterol and zero white blood cells.  Often my interpretations end up being wrong – at times, what I thought was a sure sign pointing toward bad news was nothing more than a computer glitch.  But not this time.

He gave us the good news first.  Liver looks great.  Abdomen looks fine.  Tumor markers are very low.  But in my lungs, a previously unchanging nodule (a normal thing that lots of people have) changed.  In 6 months, it seems to have grown from 4mm to 7mm.  My doctor said he really doesn’t think it is cancer, but because of my history we have to be sure.  He said he could send me for biopsy but that it really is so tiny, it would be tough to get a piece of it and a lung biopsy is no picnic.  He mentioned a chest tube and I started getting tunnel vision and feeling light headed.  Now, don’t get me wrong – I will do whatever has to be done.  What. Ever. Has. To. Be. Done.  I promised myself I would never shy away from a procedure or treatment no matter how much it would hurt or scare me.  Frankly, I’m not scared of anything like this.  I won’t like it.  I might even hate it.  But I do what it takes.  I’m not going to get sicker because of a lack of courage.  Now…given the honest recommendation of my oncologist to wait, I’ll take it.  We’re waiting to see if it grows.  If it doesn’t in two months, we’ll check again in another two.  If it grows, we’ll do the horrible sounding biopsy.  If it’s cancer, we’ll “scoop it out” (ugh) and proceed with chemo, I assume.  After all of this, he said he thinks it’s 98% not cancer.  That surprised me.  I thought we were talking 50/50.

So how am I doing?  Not great.  Not bad.  I have truly, truly been through the emotional wringer with all of this – it has this ripple effect that touches everything else in your life.  I have experienced such highs and lows through it all – I’ve felt more alive than ever in my whole life, and I’ve also felt like death doesn’t sound so bad.  I’ve felt so fully loved, so much hope, so much gratitude, and also disappointment, anger and sadness.  I’ve been shocked both by unexpected kindness and unexpected failures.  Cancer amplifies life.  Takes you soaring one day and plummeting to the ground the next.  I’m kinda beat up, honestly.

But I think the “beat up” that I feel is more the hangover that I’m experiencing from that 45 minutes in the waiting room and exam room where I knew something was wrong, and got the “bad news” vibe before I actually heard what this news was.  I suppose there is something chemical in the brain that happens – adrenaline, cortisol, something that just floods everything.  The news honestly isn’t dire at all.  As my mentor said “2%?  There’s at least a 5% chance there is something worse in my body I don’t even know about.”  That really helped me gain a little perspective, actually.  But my brain thought it was dire for 45 minutes, and it’s still there, in that “oh shit” space, even though the data says otherwise.

I dug out a Tim Keller sermon this morning, because I know I have to think my way out of this one and the best way to do that is to listen to people smarter than I am.  It was a good reminder of what I know to be true in terms of God’s goodness, His sovereignty, His purposefulness.  It also reminded me of my own responsibility in my emotional life.  There is this little fable or whatever I’ve read once or twice about there being two wolves that live inside you (I think of mine as dragons) and one is anger/frustration/unhappiness/bitterness and the other is joy/contentedness/peace/love.  They fight for control.  Which one wins?  The one you feed.

The bad dragon loves self-doubt, fear of failure, unforgiveness, performance-based acceptance, blame and shame.  I need to feed the good dragon with knowledge of God’s love and care, restful, energizing experiences, wholesome food, tough exercise, you tube videos of news bloopers, grace, people who are encouraging, fair, loving and consistent, healthy vulnerability, challenges I am capable of meeting, good books, pleasant company and prayer.  Help me feed the good dragon, ok?

 

Eucharisteo

So I’m reading this book on being thankful.  I was led down this path two ways.  One is that the magnificent Tim Keller mentions being thankful as part of the way you respond to adversity in an effective, Christ-like way. Ever since I read that in his book Walking with God through Pain and Suffering, it has stuck with me. Thanking God even when things are not going well. Being thankful in the midst of scary and painful circumstances. How can this be what He expects of us?

Then, Lisa Slayton, my trusty mentor, gave me a very interesting book – it is called One Thousand Gifts.
The author is an interesting person. She writes with peculiar cadence and word choices. She is a farmer, or maybe more accurately a farmer’s wife and mother of six kiddos, and writes like she has at least a PhD. Maybe she does. But her simple life and complex thoughts are unexpectedly divine.  I’ve seen a clip of her speaking, and she dresses and talks like an NYC poet. Such an interesting woman!  Ann Voskamp.
Early in life, she and her family experience the most horrific of tragedies. Her young sister was very accidentally killed by an oncoming delivery truck driver. They all saw it happen. Devastating. Tragic. Gruesome.
When you go through something like that, you pretty much either shut down, cross your arms and turn away from God. Or you run toward him desperately, knowing that He is the only possible thing that could ever make you in anyway OK again.
She initially chose the former, quietly, humbly.  Confused, desperately disappointed.  She continued church going but closed off part of herself.  She settled into a longtime depression of sorts.  She didn’t become an atheist or anything – she just stopped trusting God and stopped being engaged with Him.
The book talks about how she came across this idea of Eucharisteo, the table of Thanksgiving.  As long as there is grace, thanks is possible, and so joy is possible.  She met someone who was thankful IN ALL CIRCUMSTANCES (and he’d been through some doozies.)
She knows how Jesus thanks God before he asks him to do stuff. She notes that thanksgiving always precedes the miracle.
She thinks hard on this Eucharisteo.    She considers how even our saving by Christ must include gratitude.  How else could we accept the gift of salvation but with gratitude? Gratitude is the evidence and manifestation of our acceptance of his extended grace.
So she begins the list. A list of things she is thankful for. Little things, big things. God’s grace and the beauty of morning sunlight.  Her husband’s embrace.  Her children’s bare feet.  Apparently there is a workbook that goes along with this book. I don’t have it. But I got the idea that I should probably start making a list, too. The title of the book is One Thousand Gifts. So I guess that is what we’re shooting for, here. So far, I’m up to about 200. I forget things that should be obvious. I think I’ve written down some already, and realize I haven’t. I’ve written some things twice, I think. But here is the list I have so far. Many of you reading this will find your names on it. And if you don’t, it’s probably because my brain is addled from chemo and pain medication.  it’s far from complete, so your name may well be popping up soon.
I’m only about a third of the way through the book. And I have not magically transformed into a naturally thankful person. But I do find myself taking note of blessings that I took for granted before. Little things that people do or that spring up before me, source unknown.  I’m more aware, and more willing to give thanks even if I am not feeling especially thankful. Sometimes, the very act of thanking prompts those feelings of gratitude. There is some special magic in that. I don’t have it all figured it out. But I think I’m on the right track.

The best book I've read in a long time

I know I’ve mentioned this book before.  But here is a full review.

Tim Keller, in this hefty, somewhat scholarly book, thick with Scripture references, personal stories and C.S. Lewis-level logical arguments, discusses how our culture tells us that adversity, suffering and struggle are bad – they are something to get past so we can get on with real life. Suffering, such as dealing with cancer (or job loss, infidelity, serious injury, loss of a loved one) is a life disruption, a snag, an interruption from our regularly scheduled programming. But, as Dr. Keller poses, what about the biblical view?  It says this is IMPORTANT.  It’s allowed by God, by design.  It’s not retaliation for that time you missed church or lied about being stuck in traffic or even that time you stole, cheated or deeply betrayed a close friend.  The justice for all of the dumb stuff you do was satisfied, paid in full on the cross.  So, while it’s possible that your suffering may be a direct consequence of sin, ignore the temptation of yourself and others to ponder whether you “deserve” the suffering or not.  It’s irrelevant.  Additionally, depending on how you approach it, this suffering you’re experiencing can be used by you and God to galvanize your faith, to deepen your intimacy with God, to strengthen your relationships and bless you with greater wisdom, compassion and patience. 

Put another way, whatever suffering you’re going through, it’s not an accident, it’s not punishment and it’s not to be squandered.

Here is an excerpt that really challenged and encouraged me:

“If you believe in Jesus and you rest in Him, then suffering will relate to your character like fire relates to gold. Do you want to know who you are—your strengths and weaknesses? Do you want to be a compassionate person who skillfully helps people who are hurting? Do you want to have such a profound trust in God that you are fortified against the disappointments of life? Do you want simply to be wise about how life goes?

Those are four crucial things to have—but none of them are readily achievable without suffering. There is no way to know who you really are until you are tested. There is no way to really empathize and sympathize with other suffering people unless you have suffered yourself. There is no way to really learn how to trust in God until you are drowning.”

One of the most challenging aspects of this book is how Dr. Keller boldly confronts the reader with this question:  Are you in this (the Christian faith) to truly serve God, or are you in it to see how you can get God to serve you?  Oof.  That’s a rough question. Our response to suffering gives us the answer.  If we kick and scream and whine and cry and demand to be released from the suffering, we’re not approaching it with a trusting attitude toward God.  We’re basically saying “Well, I was ok with this until physical pain came up on me.”  Or “Hey, I was willing to go along until you let that man break my heart.”  If we really believe that this God loves us enough to send his son to the cross to save us from all of our terrible decisions, moral failures and selfish choices, then how can we not trust Him to be with us in the midst of of the suffering?

This book is for people who are experiencing serious suffering, or people who want to be prepared for when it comes their way.  Dr. Keller has published a gift here – a guide to having a Biblical, Christ-centered response when your world comes crashing down.  If you want to take your faith-journey to the next level, read it.

Suffering is necessary

Tim Keller, in his excellent book “Walking with God through Pain and Suffering” says that suffering is necessary.  That it’s an important way to grow.  That people who escape suffering are typically lacking in terms of resiliency, of knowing their strengths and weaknesses, of understanding the human experience with a depth of wisdom.  

Interestingly, the same devastating or traumatic experience can destroy one person, yet strengthen another.  We have to approach it in an effective way, specific to our particular variety of suffering (whether it be illness, physical pain, facing possible death, experiencing the loss of a loved one, suddenly imposed physical limitations, lack of basic needs, even a nasty break-up) to glean growth rather than bitterness.  Our hearts will be broken now and again in ways mostly small, but sometimes big.  My big one is cancer.  Some days that feels a little like this:

Maybe your “big thing” is totally different.  And maybe it’s from the past.  Or it hasn’t come yet.   Not trying to scare you.  But my hope is each of us can do a little “prep work” to help us be armed against suffering totally destroying us.
This is by no means an exhaustive list for how to deal with suffering…if you want that, start with Keller’s book.  However…
Some ways to prepare ourselves to be pointed in the direction of growth and away from the direction of bitterness:
Let’s expect that we will suffer.  Ok?  Something upsetting is going to happen at some point.  So let’s not fear or be overwhelmed by it but let’s notice that chances are, something devastating will occur in our lifetime.  That’s life.  Life is full of joy and fun and boredom and annoyance and tragedy.  It just is.  
Let’s deal with our illogical notions that if we are well behaved, we will escape suffering – it’s not Biblical, and it’s just not true if you look around.  You know perfectly nice people that have suffered.  
Let’s wrestle with the difficult reality that encountering suffering does not mean God does not love us.  Because, umm, like Jesus totally suffered and he’s God’s favorite.  
Let’s believe that suffering can produce many things: perseverance, character and hope, to name a few.  But also glory.  Straight up glory.  When all seemed lost, as Christ died on the cross…they must have thought “game over.”  A skinny naked teacher hung there dying.  A crude and tragic sight.  What fools they must have felt like, following him around for those years.  But little did they know what was happening. Little did they know the spell was being broken.  That Death was being defeated.  That God’s love was pouring out.  
Maybe God’s love is pouring out in the midst of your suffering and mine.  God can be quite subtle in His ways.  Look for the evidence.  I bet it’s there.  

Learning from cancer

So I’m reading a lot about suffering, struggles, sickness, etc. It’s heavy stuff. But it’s hopeful stuff. I’m making my way through Tim Keller’s excellent book Walking with God Through Pain and Suffering.

Dr. Keller is a giant of the faith…super smart, wry sense of humor, a man who has had his own share of struggles. Yes, please. Give me a man who loves Jesus, has a PhD and has been through cancer – triple threat, Baby. (A far cry from the days when, to me, a real man was any guy who drove a Jeep, wore Birkenstocks and listened to Dave Matthews. Ick. If I met my 16 year old self now, I would basically hate her.)

So Tim Keller talks a lot about how our culture tells us that adversity, suffering and struggle are bad – they are something to get past so we can get on with real life. Suffering such as dealing with cancer is a life disruption, a snag, an interruption from our regularly scheduled programming. But reality – biblical, real life? It says this is IMPORTANT. It’s not an accident, it’s not punishment and it’s not to be squandered. Which brings about another one of my cancer boyfriends (i.e. spiritual advisors I have never personally met) John Piper – now, he’s said some, in my opinion, unnecessarily annoying things on some controversial subjects, but I choose to ignore those, and focus on the wisdom I think he does possess. His challenge to someone like me is “don’t waste your cancer.” Intriguing, no? It’s a whole new way of looking at this kind of situation. Here are some of the more interesting ideas:

You’ll waste your cancer if…

-you don’t believe it was designed for you by God. (Whoa! Can that be true? I think it probbaly is. It’s ok if you don’t. But think about God’s soveignty – if He’s in control of everything, He can choose what to allow and what not to.)

-you consider it only to be a curse and not a blessing. (Again. Whoa. My cancer can be a blessing. It’s hard to think this way, I know. But I can see how this is possible. It’s not easy to believe that might be true. But it’s worth some consideration.)

There are other interesting and challenging ideas in this piece. See them here.  http://m.crosswalk.com/faith/spiritual-life/don’t-waste-your-cancer-1383847.html

In other news, Mort the Port is healing well. I am gaining confidence in movement – at first, it just felt icky, and I did not want to move at all, worrying that I might dislodge it or something, but that is improving a lot. Chemo begins Thursday. I am pretty confident, however, it should be noted that I have a pattern that I’ve noticed. I don’t worry about upcoming doc appointments, I don’t think too much about them. I arrive in a sunny, calm mood, and suddenly unexpectedly intrusive, embarrasing or painful things are happening that I have not mentally or emotionally prepared for. So, I’m trying to consider that they will probably tell me something disappointing, ask me to take me clothes off or hurt me with a needle in a way that I was not expecting. I will report back later in the week, on what the unanticipated experience of the day is.