I had chemo today. So I’m suffering. My body feels weird. Tired. Achy. Queasy. Uncomfortable. The cold bothers me in weird ways. My hands and feet feel stung, or electrified and then go numb. My eyes sting. Sneezing is horrifically painful.
It's the Most Wonderful Time of the Year
Getting things done around the holidays when you’re healthy is enough of a challenge. This is my 35th Christmas season and things are a little different. I bring you…Christmas splendor: the chemo version.
Chemo weekend #3
Well I figured out that last time things were so rough because I was dehydrated. Well, duh, just drink more water, Fool. Yes. But.
Round 3
As I head into round 3 of chemo, I am kind of amazed. If you told me that one day I would have cancer, and the evening before a chemo treatment I’d be sitting calmly in front of my Christmas tree, listening to holiday tunes, savoring some homemade applesauce and feeling pretty content, I would have laughed. I mean, this is one of your worst nightmares, right? I have advanced stage, aggressive cancer. It’s no joke.
Want to know what chemo is like?
My husband, aka, my driver, chef, and wiper of tears on bad days, takes me to the cancer treatment center.
In Pittsburgh, there is an enormous, fancy, well funded cancer treatment center called Hillman. It’s got sculptures, fountains and free lunch. The place I go? Is not that. But it’s close to my house and I like my doctor, so I’m ok with a boring, clinical setting. We arrive and wait a bit in the waiting room. I always notice the people there. I am always the youngest and seem the least sick. I’m never sure how to feel about that. I’m tempted to feel a little sorry for myself because, geez, these people typically have 30 years on me at least. But on the other hand, I’m feeling good enough to take a shower and put on lipstick and earrings and wear boots that once, an elderly but sassy patient loudly pointed out were not worn by “nice girls back in her day.” So mostly I feel thankful that, at least so far, we don’t really need to use the “cancer patient only” parking spaces.
So we get called back and they take my vitals. They then access Mort the Port. Mort is located below my collarbone on my left side. He’s about the size of a peach pit and he makes a weird little bump.
Via Mort, they can draw blood and give me medication. They also have to flush him with saline, which makes my mouth taste like metal for some reason. It is weird and gross. They then give me my pre-meds which include some fluids, steroids and anti-nausea medication. About then I meet with my doctor who is about my age, Indian, friendly and funny. I like him a lot. So far we’ve only gotten good news from him, such as stellar blood work and so far no evidence of cancer cropping up in other places. So my meetings with him have been pleasant and positive. He says I’m a trouper and he is impressed with my staying active, working, etc.
Then I head to the treatment area. It’s a large room with about 10 chemo stations. A lot of the people there are pretty sick. But most have a companion (spouse or friend or relative) with them and everyone seems to stay pretty positive even if they are weak and not feeling well. They hook me up to my IV chemo, a drug that causes all kinds of weird side effects. But during the infusion time, nothing major happens. My mom arrives. My husband goes to work. We chat, play Scrabble.
I watch hilarious videos on You Tube. Have silly text conversations. Answer work emails. This all takes about 3 hours. It’s afterward that things get weird.
Different types of cancer require different types of chemo. So mine may be different than someone with, say, breast cancer. Plus even the same drug may affect two people differently. So this is just what has happened to me so far. When I leave the center, I have to keep my hands and feet warm because the cold paralyzes them and makes it feel like they are being stung by a swarm of bees. And I cannot breathe in cool/cold air. If I do, my breathing becomes like someone who has just climbed 5 flights of stairs quickly. I’m out of breath and cannot “catch” it even though I am not at all over-exerted. The cold air paralyzes and causes spasms. It’s very weird. So I wear a scarf and keep it tight over my face. Mind you, it’s only been about 45 degrees so far. So, I’m sweating because I’m wearing gloves and warm socks and a scarf. It is very hard to explain to someone that you are both overheated and fearful of letting the cold get to you. People have a hard time understanding this, but I wouldn’t understand it either.
The cold sensitivity also includes food and drink. Can’t ingest anything cooler than room temperature. If I do, it feels like I’m swallowing tiny porcupines. This is tough because dehydration is a major risk with these medications and one can only drink so much hot tea. But I’m becoming a bit of a tea snob.
Also, anything sour, sweet or pungent (like a sharp cheese) is off limits. It feels like I just took a giant swig of pure lemon juice. So my diet for a week or so is warm and bland. Which is fine, because I am also nauseous. Not like toilet-hugging, stomach flu nauseous. Just unsettled and unpleasant. Nothing sounds good except, say, crackers, macaroni and cheese, toast. You get the idea.
A new side effect this time around is muscle aches. I also got a flu shot (my first ever) so maybe it’s from that. But this is for the birds. I keep waiting for a magical fairy massage therapist that does house calls to show up.
Another new side effect is that cool air or tears hurt my eyes. That’s just great. Because, you know, you never feel like crying when you have cancer. Honestly this one is just funny to me. Like…seriously?! My new motto is “There is no crying after chemo!” Seriously, I cried a little bit yesterday and immediately decided that there will absolutely be no more of that until this stuff wears off a bit. A friend’s daughter sent me a beautiful painting of a stained glass window from her church today. It was so sweet I got a tiny bit weepy and had to be like “Nope. No way. This is not adorable at all.”
So, it will be like this for a while. But it gets better. I still have to take the oral medication for two weeks, but my body seems to tolerate that much better than the IV chemo I get. Now, lest you think I’m just sitting here feeling bad and sorry for myself…I’d like to end with some gratitude.
I’m grateful for my husband handling everything while I am pretty much just capable of getting through the day. I’m thankful for my mom making sure I have everything I need and taking me out when I’m up for it. I’m thankful for the awesome care packages and cards and texts and shout outs on Facebook. I’m thankful that people care enough to read this blog. I’m thankful I’m not sicker. I’m thankful that God has been faithful every step of the way, giving me hope when I need it, grace when I need it and peace the entire time. I sincerely am filled with peace and even joy almost all of the time. Cancer does some terrible things. But it is making me tougher, wiser, kinder and more faithful every day. So, I’m grateful for this experience, even the messy, painful parts. Besides…I’m a fighter, yo.
Tough cookies
So this journey took an unexpected turn when my lovely friend, Laura, left this world unexpectedly. You can read about her HERE. She was battling cervical cancer like a real badass when suddenly the cancer just went out of control. A little while in the hospital, docs trying hard to stop it or slow it down. But it was her time. She knew it. Posted on Facebook shortly before that she guessed her number had been called. That she loves us all to the moon and back. And then she was gone. I still can’t believe it. The very toughest of cookies.
There is simply no way but forward.
This thought occurred to me recently as they popped the needle into Mort the Port to take some blood and, as they do every three weeks, make sure I didn’t go ahead and get myself knocked up between three weeks ago and now. (What do they think is going ON in my house?? I must look very, verrray sexy to them.)
Or maybe Kevin does.
So, I can’t just sit down and languish until the vultures come for me. There is no way but forward. This thought keeps coming into my head. Maybe it’s just a sensible notion. Maybe it’s the Holy Spirit nudging me along. Maybe Laura sent me that wisp of a thought that swirled its way through the clouds and rainbows, as she left this world, making its way toward me as she came into God’s glorious presence. Whatever brought it to me, it’s true. Forward is the way.
People tell me they admire my strength. That I’m a proverbial Tough Cookie. Am I? I’m never quite sure how to take that because 1. I’m leaning real hard on God right now. 2. I’m not exactly doing this alone – I’m so crazy blessed to have the best army of food-makers, child-watchers, juice-deliverers, jewelry-senders, scarf-givers, flower-bringers and prayer warriors in all the land! 3. I do feel angry, sad and a sense of disbelief at times. (I just choose to usher those emotions out the door after a short but meaningful visit.). Now, on the other hand, I’m also motivated, persistent and stubborn as a grumpy mule.
So when someone says that to me, I am filled with conflicting emotions and corresponding potential responses: “Thanks! No I’m not. I’m actually very sad and tired today. Me? Strong? Thanks for noticing. You’re nuts. I’m strong because of people like you helping me. I am strong aren’t I? I’m not strong – just a little crazy. I’m a total badass. I’m as strong as a newborn kitten. I’m a fraud! Its all God – I’m nothing without Him. I am pretty awesome, huh? I can’t believe I have this many people fooled. Bring it on, Cancer! I should really be wearing actual red Wonder Woman boots. It’s because of all the prayers. I’m hungry – maybe you’d like to help me be strong by making me a vegan-paleo-gluten free-organic-nonGMO sandwich?”
Chemo sucks. (How do I hate thee? Let me count the ways.) Friends leaving this world too soon is the worst – There is a Laura shaped space in my heart that will always feel empty. Cancer is a mean, nasty, violent thing. But there is no way but forward. There is no way to be but strong. Not because anyone can do it alone or because we’re looking to impress anyone. I’m not talking about ACTING strong. I’m saying let’s BE strong. Strong is admitting you’re weak and need help. Strong is going to work even though you don’t feel quite right – because you are ok with looking less than your best. Strong is also staying home because Lord knows the world goes on without us. Strong is striving hard but knowing when to let someone else carry you for a bit. Strong is laughing at the absurdity of it all. Strong is knowing, 1. without God, we’re totally screwed and 2. that it takes a lifetime to begin to grasp His infinite goodness. Strong is having perspective that is not limited to today’s pain and tomorrow’s fears. Rather fix your eyes on what is unseen. For what is seen is temporary; what is unseen is eternal.
Forward is the way. Strong is the way. God is the way.
Back to fighting traffic
In Pittsburgh and the surrounding vicinity, there are many neighborhoods to choose from. My family recently moved from the South Hills to an area east of the city. There are many good things about this location, but the biggest baddest thing is fighting the traffic at the Squirrel Hill tunnels every morning and evening. Many writers before me have waxed philosophical about the lack of explanation of the origin of this nearly always present traffic – there is never an accident, roadblock or lane closure. Just a strange phenomenon of people slowing down, quite abruptly, as if the tunnel has in some way startled them, as if there are not actual signs not only alerting us to their presence but actually instructing us to maintain our speed. The part that really get me is that this happens each day during rush hour. We must assume that the vast majority of these travelers embark on this westward journey regularly. And still the tunnel scares them, and still they slow, and make us all late.
Chemo, my frenemy
Chemo is a funny thing. It’s making me feel way worse than cancer has, and yet we have to assume it’s helping me. It is difficult to willingly allow someone to put poison in your body. One of my poisons is made of platinum. I know, I’m fancy. But that’s a metal. And it’s in my blood. That’s weird.
Chemo Smackdown-O-Rama-Fest: Round 1
We arrived at the treatment center and got hooked up via Mort the Port to an IV of pre-meds. (Steroids and anti-nausea stuff.) We then met with my doc, Dr. Mehta. He gave us good news: my cancer has NOT spread. They hadn’t assumed it had but its good to know concretely. Also my blood work (white blood cells, etc. were all in normal ranges.) **These are answers to prayer.** When God answers our prayers so clearly – its worthy of a moment of our time and consideration. We have to pause, acknowledge, give thanks. He does not always answer with what we are looking for – sometimes the journey is longer than the one we planned for. But sometimes we get a simple gift like this. I am grateful. I give thanks that this cancer hasn’t spiraled out of control. There is an army in my body fighting it, and it’s doing an amazing job. I’m thankful for my surgeon who did a difficult surgery well and removed what was visible. Thank you, Lord for all of your provisions.
Learning from cancer
So I’m reading a lot about suffering, struggles, sickness, etc. It’s heavy stuff. But it’s hopeful stuff. I’m making my way through Tim Keller’s excellent book Walking with God Through Pain and Suffering.
Dr. Keller is a giant of the faith…super smart, wry sense of humor, a man who has had his own share of struggles. Yes, please. Give me a man who loves Jesus, has a PhD and has been through cancer – triple threat, Baby. (A far cry from the days when, to me, a real man was any guy who drove a Jeep, wore Birkenstocks and listened to Dave Matthews. Ick. If I met my 16 year old self now, I would basically hate her.)
So Tim Keller talks a lot about how our culture tells us that adversity, suffering and struggle are bad – they are something to get past so we can get on with real life. Suffering such as dealing with cancer is a life disruption, a snag, an interruption from our regularly scheduled programming. But reality – biblical, real life? It says this is IMPORTANT. It’s not an accident, it’s not punishment and it’s not to be squandered. Which brings about another one of my cancer boyfriends (i.e. spiritual advisors I have never personally met) John Piper – now, he’s said some, in my opinion, unnecessarily annoying things on some controversial subjects, but I choose to ignore those, and focus on the wisdom I think he does possess. His challenge to someone like me is “don’t waste your cancer.” Intriguing, no? It’s a whole new way of looking at this kind of situation. Here are some of the more interesting ideas:
You’ll waste your cancer if…
-you don’t believe it was designed for you by God. (Whoa! Can that be true? I think it probbaly is. It’s ok if you don’t. But think about God’s soveignty – if He’s in control of everything, He can choose what to allow and what not to.)
-you consider it only to be a curse and not a blessing. (Again. Whoa. My cancer can be a blessing. It’s hard to think this way, I know. But I can see how this is possible. It’s not easy to believe that might be true. But it’s worth some consideration.)
There are other interesting and challenging ideas in this piece. See them here. http://m.crosswalk.com/faith/spiritual-life/don’t-waste-your-cancer-1383847.html
In other news, Mort the Port is healing well. I am gaining confidence in movement – at first, it just felt icky, and I did not want to move at all, worrying that I might dislodge it or something, but that is improving a lot. Chemo begins Thursday. I am pretty confident, however, it should be noted that I have a pattern that I’ve noticed. I don’t worry about upcoming doc appointments, I don’t think too much about them. I arrive in a sunny, calm mood, and suddenly unexpectedly intrusive, embarrasing or painful things are happening that I have not mentally or emotionally prepared for. So, I’m trying to consider that they will probably tell me something disappointing, ask me to take me clothes off or hurt me with a needle in a way that I was not expecting. I will report back later in the week, on what the unanticipated experience of the day is.